agosto 2016

Early integration of Palliative care for children with high risk cancer and their families

By | agosto 8th, 2016|Cuidados Paliativos en Niños y Adolescentes, Familia|

Despite increasing data to support pediatric palliative care (PPC)as an integral component of high-quality care for children with lifethreatening conditions and their families, timely integration of PPC is offered inconsistently to children with high-risk cancer. In this review,  we summarize the growing body of literature in support of early integration of PPC for children with high-risk cancer and [...]

Lecturas recomendadas en C.Paliativos Pediátricos

By | agosto 8th, 2016|Educación Paliativa|

Bibliografía en internet sobre cuidados paliativos pediátricos. Recursos on line en español y en Inglés. Heathers L. Rogers, Catherine D¨Souza y Satbir Jassal. Medicina Paliativa en niños y adolescentes. 2015. PSF. 699--708   Nadie puede procurarte paz  salvo el triunfo de los principios. Ralph Waldo Emerson DESCARGAR PDF

El cuidado del paciente terminal /Care of the terminal patient

By | agosto 2nd, 2016|Enfermería|

El equipo sanitario debe transformarse en un equipo cuidador. El cuidado como medio y la calidad de vida y el confort como finalidad son los objetivos que debemos tener los cuidadores durante la fase final de la vida, tal y como promulgó el Subcomité Europeo de Cuidados Paliativos de la CEE, el 5 de mayo de 1991, al [...]

Who cares?: Information for dementia carers

By | agosto 2nd, 2016|Cuidadores|

This booklet has been written to tell you: ●More about dementia. ●What it is like for someone at home. ●How to ease the problems of day-to-day care. ●About the help available to carers. Dementia is a distressing condition and a lot of what follows in this booklet may be painful to you. But the booklet [...]

Symptoms experienced by intensive care unit patients at high risk of dying

By | agosto 2nd, 2016|Tratamientos|

Study findings suggest that unrelieved and distressing  symptoms are present for the majority of intensive care unit patients, including those with delirium. Symptom assessment in high-risk intensive care unit patients may lead to more focused interventions to avoid or minimize unnecessary suffering. (Crit Care Med 2010; 38:000–000) DESCARGAR PDF

Primary Care Guidelines for the Management of Persons Infected with HIV: 2009

By | agosto 2nd, 2016|Guías y monografías, SIDA/VIH|

Evidence-based guidelines for the management of persons infected with human immunodeficiency virus (HIV) were prepared by an expert panel of the HIV Medicine Association of the Infectious Diseases Society of America. These updated guidelines replace those published in 2004. The guidelines are intended for use by health care providers who care for HIV-infected patients or [...]

El derecho a la educación del niño enfermo y hospitalizado

By | agosto 2nd, 2016|Derechos de los Enfermos|

En este artículo se presentan los principales documentos y Cartas sobre los derechos de los pacientes pediátricos. El aspecto nuclear gira en torno al derecho a la educación del niño y del adolescente enfermos u hospitalizados. Se parte de la experiencia de la Organización Europea de Pedagogos Hospitalarios y del ejemplo concreto de España como vía para mostrar [...]

Palliative care for disabled people

By | agosto 2nd, 2016|Biblioteca|

Palliative care for disabled children and young people embraces holistic, high quality, evidence-based care, recognition and timely management of  symptoms, recognition and discussion with the multidisciplinary team and with families about the possibility of dying and care and support through life, death and bereavement. Systems are being piloted across the UK to collect data about who and  where children [...]

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